Growing up with Cystic Fibrosis, I had to learn to be flexible. With my schedule, my time, my health, my everything. In my younger years (and honestly sometimes now), I was rarely willing to be flexible with completing treatments. I didn’t want to take the time to sit down and complete my therapy. Why? Because it felt like I was being punished. Taking 20-30 minutes, 2-3 (sometimes 4) times a day was just too much time to not be outside. To not be hanging out with my friends. To not be going to the movies. To not be living life. I wasn’t willing to be flexible with CF and therefore it wasn’t willing to be flexible with me.
Cue the hospitalizations. And guess what that equated to? Even more time away from friends, school and life! Because hospital stays were ALWAYS a minimum of 7 days. Are you saying “Girl, get your sh!t together!” because believe me, I am too. My younger self was dumb, in denial and ashamed of CF. Trust me, I know what your thinking. But I can’t change that part of my life, it’s in the past, and honestly, I wouldn’t want to. Because I grew from it. I became resilient from it. I now get the opportunity (praise Jesus!) to pick up the pieces, care for myself properly and be flexible, SO flexible.
Allow me to introduce you to the newest member of the fam – The Monarch Airway Clearance System. *Currently taking name suggestions* This bad boy allows me to do my chest therapy anywhere and everywhere because it’s completely mobile! Before my Monarch, therapy was done with a vest attached to a 6ft hose attached to a box that had to be plugged into an outlet. To me, that meant 20-30 minutes of doing nothing when I could be getting other things done. Not ideal but necessary. Now, I have all the flexibility and I’ve never felt more free and in control!
Unload groceries and vest ✔️
Empty dishwasher and vest ✔️
Make my morning coffee and vest ✔️
Post coffee poo and vest ?? ✔️
Go outside with the dogs and vest ✔️
Decorate the house for fall and vest ✔️
Make dinner and vest ✔️
Travel and vest ✔️
Get ready for work and vest ✔️
Publish this blog and vest ✔️
There’s nothing I can’t do and vest at the same time now! #NextLevelMultitasking
I never imagined a day where I’d be walking around freely and doing my vest at the same time. The advances and research made for CF have made bounds and leaps and for that, I am so incredibly grateful!! Watch out, you never know what you’ll see me doing and vesting next!